MY
Story
"I Am Living My Worst Life The Best I Can;
I Choose Happiness!"
Brooke Edmiston
Diagnosis List
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Ehlers-Danlos Syndrome
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Postural Orthostatic Tachycardia Syndrome
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Mast Cell Activation Syndrome
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Chiari Malformation
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Complex Regional Pain Syndrome
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Syringomyelia
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Poly-Cystic Ovary
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Gastritis
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Delayed Gastric Emptying
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Psychogenic Non-Epileptic Seizures
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Hip Dysplasia
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Chronic Syncope Episodes
Welcome To My Story!
Where To Begin,
I Was Blessed With An Amazing Childhood Filled With Lots Of Family, Friends & Supporters!
I Was A Dancer From Age 3 Till Age 8 When I Began Cheering As Well!
When I Began Highschool I Decided Cheer Was More My Thing & That Was What I Wanted To Continue!
November 24, 2016 (My 18th Birthday) This Was The Last Time I Put On A Cheer Uniform On
I Marched The Entire New York Macy's Thanksgiving Parade With Thousands!
It Was My Final & Most Memorable Performance!
I Had Planned On Doing An Adult Cheer Team, But My Body Had Other Plans For Me!
At The Time Of This Performance, I Had Already Been Sick Over 2 Years With Not One Answer As To Why!
I Had Been Battling A Chronic Stabbing Pain Since October 2014
Only Months Before My New York Performance I Had Lost Sensation In The Right Side Of My Body
While Slowly Losing The Ability To Walk Long Distances.
I Was Spending Week After Week In The Emergency Room & Doctors Offices Looking For Answers!
Not Until December 2017 Did I Start Finding Out The Main Cause & Other Underlying Conditions!
After Doctor Recommendation, I Saw A Geneticist & Was DIagnosed With Ehlers- Danlos Type 3 Hypermobile
This Sparked A Fire Under My Doctors & They Began Looking For All Different Issues!
During This Time, With The Little Mobility I Had Left, I Would Go With My Best Friend Line Dancing
This Was My Escape For The Longest Time & I Miss It Every Day!
Line Dancing Was The Closest I Thought I Would Get To Performing Again & I Loved It!
As Time Went On, It Became Harder For Me To Dance So Eventually I Stopped Going...
By January 2019 I Was Diagnosed With 5+ Different Conditions
The Important Part Was Not The Diagnosis's, But How We Were Going To Manage It
As Of June 2019, I Am In Route To Getting A Spinal Stimulator Implanted For Constant Nerve Intervention
I Spend Every Day Doing The Best I Can With What I Have!
My Days Can Change By The Hour, So It Can Be Really Hard For Me To Make Plans & Do Things
But With The Help Of My Boyfriend, Family & My Service Dog
I Do As Much As I Can When I Can While Listening To What My Body Needs
Some Days Can Be Harder Than Others, But I Never Give Up Hope That I Can One Day Get Back On A Dance Floor!
I Have Learned That While My Health Is Not The Best, It Is My Choice What I Let It Take Over!
As One Of My Many Inspirations Once Said
“I’m trying to not die here and it’s fucking wild.” - Claire Wineland
Let's Choose Life! Choose Happiness!
Welcome To My Life & Please Reach Out With Any Comments/Qurstions
I Do My Best To Answer Everything! Thank You For Reading My Story & Let's Fight Together!