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MY
Story

"I Am Living My Worst Life The Best I Can;
I Choose Happiness!"

Brooke Edmiston

Diagnosis List

  • Ehlers-Danlos Syndrome

  • Postural Orthostatic Tachycardia Syndrome

  • Mast Cell Activation Syndrome

  • Chiari Malformation

  • Complex Regional Pain Syndrome

  • Syringomyelia 

  • Poly-Cystic Ovary

  • Gastritis

  • Delayed Gastric Emptying

  • Psychogenic Non-Epileptic Seizures

  • Hip Dysplasia

  • Chronic Syncope Episodes

Welcome To My Story!

Where To Begin,

I Was Blessed With An Amazing Childhood Filled With Lots Of Family, Friends & Supporters!

I Was A Dancer From Age 3 Till Age 8 When I Began Cheering As Well!

When I Began Highschool I Decided Cheer Was More My Thing & That Was What I Wanted To Continue!
November 24, 2016 (My 18th Birthday) This Was The Last Time I Put On A Cheer Uniform On 

I Marched The Entire New York Macy's Thanksgiving Parade With Thousands!

It Was My Final & Most Memorable Performance!

I Had Planned On Doing An Adult Cheer Team, But My Body Had Other Plans For Me!
At  The Time Of This Performance, I Had Already Been Sick Over 2  Years With Not One Answer As To Why!
I Had Been Battling A Chronic Stabbing Pain Since October 2014 
Only Months Before My New York Performance I Had Lost Sensation In The Right Side Of My Body
While Slowly Losing The Ability To Walk Long Distances.

I Was Spending Week After Week In The Emergency Room & Doctors Offices Looking For Answers!
 Not Until December 2017 Did I Start Finding Out The Main Cause & Other Underlying Conditions!
After Doctor Recommendation, I Saw A Geneticist & Was DIagnosed With Ehlers- Danlos Type 3 Hypermobile
This Sparked A Fire Under My Doctors & They Began Looking For All Different Issues!

During This Time, With The Little Mobility I Had Left, I Would Go With My Best Friend Line Dancing
This Was My Escape For The Longest Time & I Miss It Every Day!
Line Dancing Was The Closest I Thought I Would Get To Performing Again & I Loved It! 
As Time Went On, It Became Harder For Me To Dance So Eventually I Stopped Going...

By January 2019 I Was Diagnosed With 5+ Different Conditions

The Important Part Was Not The Diagnosis's, But How We Were Going To Manage It

As Of June 2019, I Am In Route To Getting A Spinal Stimulator Implanted For Constant Nerve Intervention

I Spend Every Day Doing The Best I Can With What I Have!

My Days Can Change By The Hour, So It Can Be Really Hard For Me To Make Plans & Do Things

But With The Help Of My Boyfriend, Family & My Service Dog
I Do As Much As I Can When I Can While Listening To What My Body Needs

Some Days Can Be Harder Than Others, But I Never Give Up Hope That I Can One Day Get Back On A Dance Floor!
I Have Learned That While My Health Is Not The Best, It Is My Choice What I Let It Take Over!

As One Of My Many Inspirations Once Said
“I’m trying to not die here and it’s fucking wild.” - Claire Wineland ⁣

Let's Choose Life! Choose Happiness!
Welcome To My Life & Please Reach Out With Any Comments/Qurstions
I Do My Best To Answer Everything! Thank You For Reading My Story & Let's Fight Together!


 


 

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