EHLERS-DANLOS SYNDROME​
I Was Diagnosed With
Ehlers-Danlos Syndrome
In December Of 2018
After Being Misdiagnosed & Undiagnosed For 4 Years, I Saw A Pain Management Doctor At Standford Medical Center Who Took One Look At My Case, My Symptoms & Was Confused How Everyone Else Missed It!
I Was Quickly Sent To A Geneticist That Confirmed I Had Ehlers-Danlos Type 3
(Hypermobile, Which Made A Lot Of Sense Because I Have Been Beyond Flexible My Whole Life!)
After Learning About This Diagnosis, My Other Symptoms Started To Come Together With The Common Cause Being Ehlers-Danlos!
​
​
Ehlers Danlos Tpes
"The Ehlers-Danlos syndromes (EDS) are currently classified in a system of thirteen subtypes. Each EDS subtype has a set of clinical criteria that help guide diagnosis; a patient’s physical signs and symptoms will be matched up to the major and minor criteria to identify the subtype that is the most complete fit. There is substantial symptom overlap between the EDS subtypes and the other connective tissue disorders including hypermobility spectrum disorders, as well as a lot of variability, so a definitive diagnosis for all the EDS subtypes—except for hypermobile EDS (hEDS)—also calls for confirmation by testing to identify the responsible variant for the gene affected in each subtype." The Ehlers Danlos Society
Image Provieded By The Ehlers DanlosSociety
